What I Wish Other People Understood About Losing A Child

Four and a half years after the death of my oldest son, I finally went to a grief support group for parents who have lost children. I went to support a friend who recently lost her son. I'm not sure I would've gone except that when I was in her shoes, four years ago, I wish I'd had a friend to go with me. Losing a child is the loneliest, most desolate journey a person can take, and the only people who can come close to appreciating it are those who share the experience.

The support group was part of a larger organization solely dedicated to providing support for those who have lost children, grandchildren, or siblings. The facilitator opened the meeting by saying that dues to belong to the club are more than anyone would ever want to pay. Well, he couldn't be more correct: No one wants to belong to this group. When hearing the stories from other parents, I had a visceral reaction to being part of this "club" but was also humbled by the greatness of these mothers and fathers.

The following five tips can be your compass to help you navigate how to give support to grieving parents on a sacred journey they never wanted to take:

The loss of children is a pain all bereaved parents share, and it is a degree of suffering that is impossible to grasp without experiencing it firsthand. Often, when we know someone else is experiencing grief, our discomfort keeps us from approaching it head-on. But we want the world to remember our child or children, no matter how young or old our child was.

If you see something that reminds you of my child, tell me. If you are reminded at the holidays or on his birthday that I am missing my son, please tell me you remember him. And when I speak his name or relive memories, relive them with me; don't shrink away. If you never met my son, don't be afraid to ask about him. One of my greatest joys is talking about him.

An out-of-order death such as child loss breaks a person (especially a parent) in a way that is not fixable or solvable. We will learn to pick up the pieces and move forward, but our lives will never be the same. Every grieving parent must find a way to continue to live with loss, and it's a solitary journey. We appreciate your support and hope you can be patient with us as we find our way.

Please: Don't tell us it's time to get back to life, that's it's been long enough, or that time heals all wounds. We welcome your support and love, and we know sometimes it's hard to watch, but our sense of brokenness isn't going to go away. It is something to observe, recognize, accept.

We still count birthdays and fantasize about what our child would be like if he or she were still living. Birthdays are especially hard for us. Our hearts ache to celebrate our child's arrival into this world, but we are left becoming intensely aware of the hole in our hearts instead. Some parents create rituals or have parties while others prefer solitude. Either way, we are likely going to need time to process the marking of another year without our child.

Then there's the anniversary of the date our child became an angel. This is a remarkable process similar to a parent of a newborn, first counting the days, then months, then the one-year anniversary, marking the time on the other side of that crevasse in our lives.

No matter how many years go by, the anniversary date of when our child died brings back deeply emotional memories and painful feelings (particularly if there is trauma associated with the child's death). The days leading up to that day can feel like impending doom or like it's hard to breathe. We may or may not share with you what's happening.

This is where the process of remembrance will help. If you have heard me speak of my child or supported me in remembering him or her, you will be able to put the pieces together and know when these tough days are approaching.

It's an ongoing battle to balance the pain and guilt of outliving your child with the desire to live in a way that honors them and their time on this earth. I remember going on a family cruise 18 months after Brandon died. On the first day, I stood at the back of the ship and bawled that I wasn't sharing this experience with him. Then I had to steady myself and recognize that I was also creating memories with my surviving sons, and enjoy the time with them in the present moment.

As bereaved parents, we are constantly balancing holding grief in one hand and a happy life after loss in the other. You might observe this when you are with us at a wedding, graduation, or other milestone celebration. Don't walk away—witness it with us and be part of our process.

Our loss is unnatural, out of order; it challenges your sense of safety. You may not know what to say or do, and you're afraid you might make us lose it. We've learned all of this as part of what we're learning about grief.

We will never forget our child. And, in fact, our loss is always right under the surface of other emotions, even happiness. We would rather lose it because you spoke his/her name and remembered our child than try and shield ourselves from the pain and live in denial.

Grief is the pendulum swing of love. The stronger and deeper the love, the more grief will be created on the other side. Consider it a sacred opportunity to stand shoulder to shoulder with someone who has endured one of life's most frightening events. Rise up with us.